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RAREsies Rule Scholarship Frenzy

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RAREsies Rule Scholarship Frenzy

Fractures, several surgeries, and 2-3 rounds of bone lengthening procedures is what is usually expected. All this at a very young age, anywhere between 3 and 17 years old. Most RAREsie Ollier Warriors have a lift on one shoe. Unfortunately being teased, bullied, shun upon is part of our world. The 1... Read More

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Fractures, several surgeries, and 2-3 rounds of bone lengthening procedures is what is usually expected. All this at a very young age, anywhere between 3 and 17 years old. Most RAREsie Ollier Warriors have a lift on one shoe. Unfortunately being teased, bullied, shun upon is part of our world.

The 1st recipient of our RR/ODC Educational Scholarship is a young lady in Toronto, Ontario, Canada! She is about to have her second leg lengthening, which takes approximately 8 weeks. RR/ODC would like to ensure this young lady has a secure future, and that her parents are at ease knowing this.  Our 1st US recipient is Bryce from Dudley, MA. 

Your donation will go toward a $10,000 Educational Scholarship, (in a field of her/his choice, in an approved educational school program), which will help her/him begin her/his next steps in life.

As a patient advocate, coming from years of being a guinea pig at a very early age, several surgeries, being in and out of the hospital,  my experiences have provided me with years of knowledge surrounding this disease. Supporting families is a priority as I do not want them going down the path of Social Services.  As a person who has lived 'in the system', I know the struggles, the missed opportunities, lack of guidance, and money, due to having a rare disease/disability. Instead I was placed within a government grid, like a foster child going from home to home.

My fight is for them, the Ollier RAREsie Warriors growing up behind me! I am older now, it is my time to give back. Changes must be made, voices must be heard, and RAREsies must Never Give Up.

Keep Smiling,

JOANNE

Founder & CEO

RAREsies Rule/Ollier's Disease Canada

Posted By Joanne Paquette

April 05, 2021

Youhelp Updates

We are aiming at $500 for the month of April. Let's shake things up a little. We have created a level with prizes! Choose your level, donate and we will enter your name in the draw. Winners will be notified by email. Please ensure to include your email address when donating. Thank you!

$20  = 6 Piece Shadow Box Gallery Frames

$35  = Slip n'slide

$50  = Foyer Bench with hooks

$100= Gift Card for SAIL

 

 


RAREsies Rule Scholarship Frenzy

$385 of $10,000

raised from 12 people

RAREsies Rule Scholarship Frenzy

Joanne Paquette, on behalf of

RAREsies Rule/Ollier's Disease Canada

Growing up with Ollier's disease, and as a guinea pig, I missed out on a lot of aspects in life. I remember my first two hospital stays, I remember grades 1, 5-11. I was in and out of hospital, home and school. I never really felt as though I fit in. I want RAREsies Ollier Warriors to succeed.

Joanne Paquette

Joanne is a very determined and strong person. She has battled a rare bone disease since birth and has undergone 49 surgeries to date. Joanne is always smiling, willing and wanting to help others, has a strong communication manner and is determined to succeed in order to help others. Never Give Up

INTERNATIONAL: Orleans , CA

Recent Donations

  • $50.00

    Karen Langlasi

    5 months ago

  • $50.00

    Karen Langlais

    6 months ago

  • $30.00

    Antonia

    6 months ago

  • $25.00

    Geof Botting

    6 months ago

  • $40.00

    Suzanne Paquette

    6 months ago

  • $50.00

    Diane

    6 months ago

  • $40.00

    Ashlee Highley

    6 months ago

  • $50.00

    Kristy Zavala

    7 months ago

    Our Son suffer from this disease, we definitely know the importance of staying focused on school.

  • $10.00

    Peter & Daphne Meldrum

    7 months ago

    I paid my hubby the cash to use his card, :) I don't have a credit card sweetie! Xo

  • $20.00

    Julie Brazeau

    7 months ago

  • $15.00

    Gavin Paquette

    7 months ago

    My mom is the strongest person I know. She truly wants to help Ollier RAREsies succeed like my older brother & sister and now me! Thank you all for helping out!

  • $5.00

    Joanne Paquette

    7 months ago