The Larisah Strong Foundation was founded to help families with children who have been diagnosed with brain cancer by assisting with travel expenses, medical bills and household costs. I started this foundation in hope of spreading awareness of brain and spinal tmors. Many people don't ... Read More
The Larisah Strong Foundation was founded to help families with children who have been diagnosed with brain cancer by assisting with travel expenses, medical bills and household costs.
I started this foundation in hope of spreading awareness of brain and spinal tmors. Many people don't understand the extent and lack of treatment available for this deadly cancer.
Brain cancer has touched my family personally. In October 2016, I receive a call that my little sister had a tumor on her brain and she would undergo surgery the next morning. She underwent brain surgery and they were able to remove most of the tumor. The biopsy of the tumor came back as cancer (Medullablastoma). She did chemotherapy and radiation therapy. She went for her normal MRIs and it was working. She completed her treatment in January 2018.
In May of 2018, she started showing symptoms and was brought back to the hospital. They did another MRI and found that the cancer had returned and spread to different parts of her brain. We were informed that there wasn't anymore treatment they could offer her.
We met and talked to three different doctors who perform clinical trials for pediatric recurring meduallablastoma. One doctor informed us we only had weeks left with her if we didn't get her some kind of treatment. Upon meeting with the other doctors, we were told it would be months without treatment.
Larisah decided to do her Make a Wish, which was a Disney Cruise. She loves Disney and sea turtles. She got to see sea turtles in Atlantis and again in the wild while snorkeling. She got to take pictures with Stitch, which is her favorite character.
On the cruise she decided which study she wanted to participate in. She choose the study that wouldn't require her to have another brain surgery. We choose to go with Dr. Ted Johnson's Immunotherapy clinical trial. She started the trial July 12, 2018, and will bega radiation therapy, July 30, 2018.
During the treatment period and travel, I have watched the financial burden placed on my family. I decided to start The Larisah Strong Foundation to assist other families who have been hit with the financial burden for treatment and travel expenses.
Pleas help us raise the funds to help these families. Please say your prayers for all the children who are fighting their way to live another day.
Lets find a cure.
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LGBTQ Youth D.B.A The Larisah Strong Foundation
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