Empowering Parents, According to the recent reports on the news regarding autism. New Jersey has the highest rates in the U.S. The number will continue to rise unless there are some answers. The “why” seems out of the question.The question always arises “What causes autism?” No one has a de... Read More
According to the recent reports on the news regarding autism. New Jersey has the highest rates in the U.S. The number will continue to rise unless there are some answers. The “why” seems out of the question.
The question always arises “What causes autism?” No one has a definitive answer. The main concern is where is the support for the parents and caregivers of these children. The services are very sparse or nonexistent. Many parents are so overwhelmed with everyday care they don’t have time to access their needs. Parents and caregivers are developing anxiety, PTSD and a number of physical conditions because they have symptoms that can’t be addressed due to the needs of the child.
Hiring a sitter most of the time is impossible. The parent or caregiver is the only one who understands the child. Many of the health care agencies do not have people who are trained. Insurance is also a factor in getting services. Services, for the most part, is out of pocket. Low-income people are stuck because it becomes a hopeless situation for them. I feel their pain because I was one of them.
My goal as an organization is to reach out to them. As a parent of a son and granddaughter with autism, you experience emotional pain that is unspeakable, you live in a bubble because no one understands unless they walk the walk with you. Parents have to be armed with information. Knowledge is power. Bringing parents together to share information and experiences.
The organization will work with the parents by having one on one meetings to assess the needs of the child. On sight, visits will be done in the school setting to determine the functioning level of the child. Workshops will be presented so that parents will acquire new and old information along with sharing their experiences.
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Miracle Link Inc.
Patricia is a retired special educator. She is also the mother of an adult son who was severely non- verbal autistic who passed away in November, 2016. Her organization was created in honor of her son to support families who have children with autism. The mission is to continuously provide information through workshops and literature about support services.
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